Sarcoma, retroperitoneal to be exact Oh and lipo- sarcoma as an added bonus.

Well let's start with the sarcoma vibe, that is rare but I also know so many people have been struck by.

Our journey started about four and a half years ago, however it feels like a hundred years.

Touching wood has been our go to do those years because anyone that has dealings with this particular disease will tell you, there are never any guarantees, there are no real cures and there is a whole lot of stress.

40 odd years ago I met a geeky soon to be teenager, who asked me on a date within a week of meeting him, little did I know that the man I refused on several occasions would one day become my best friend, oh and my husband...

at the grand era of my mid thirties we re met, if that's even a grammatically well structured sentence? I have no idea.

You know the score, fell in love, settled down and brought me a whole lot of happiness and peace. I think my sliding door moment was at the age of 12, where I refused his advances based on his chunky chorduary trousers and his penchant for chess.

Let's dash forwards and leave out the peace and serenity we both found and skip to the aggressive vile sarcoma diagnosis.

I will never forget the build up, my husband was diagnosed with diverticulitis which had caused a fusion between bladder and bowel, there we were scared about the surgery for this, however life was good and lots of people work through surgery don't they.

Until a scan showed up a weird mass in his abdomen, little did we know that weird mass was about to blow our world into a million tiny pieces and would change everything, apart from us, nothing could change us.

Within a week we got an appointment to see a specialist in London, he was to become our hero.

One of the rarest sarcomas nestled within his internal organs, fast growing, immune to chemo and radiotherapy. The only viable way to

Improve your chances of life was to remove it and everything else near it..

basically any organ... whilst my husband is in my eyes a hero, even he wouldn't cope without his heart.

Praying profusely and spending nearly all our savings we opted for private treatment as time was of the essence.

This strategy was a win because when he was opened up in the 7 days it took us to get into surgery it had grown further into his muscle than thought..

That day was and always will be the longest day of my life.

As I'm writing this I'm revisiting the trauma, I want to share a positive of sarcoma, yes I know it isn't always and I also know we live every day knowing it can pop back into our lives, but I will be sharing the lows, and the positives of our journey so far.

Remember I said his diagnosis was four and a half years ago... I hope that on its own will make someone smile, because anyone that knows sarcoma particularly this version will know that's a true positive.